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Big Brother is an intimate photographic portrayal of my brother, Justin’s struggle with schizophrenia. It utilises multiple sources of documentation to show his life from different perspectives; his art, my photographs and narration juxtapose with medical and police records. The work reveals a system in crisis, but at its heart is a love story and a project that values and celebrates those suffering from mental health.
This page shows a small sample of pictures and discusses the projects ambitions.
Where it can be seen
I am currently looking to publish the work as a book and show it as an exhibition as well as disseminating the project in talks and presentations. The work may also be translated (funding allowing) into a performance, using more experimental and explorative forms, to draw out parts of the story, which are difficult to document.
Schizophrenia is a disease that can wreck lives; it can explode whole families (it did ours) and leave shock waves that can be felt generations later.
One in four of us will suffer from a mental health problem in the UK this year. Despite this, funding is shrinking and increasingly the police have to step in to fill the space; with sometimes absurd consequences.
Justin has been sectioned three times in his life and there is no getting away from the fact that his condition is severe. Yet hopefully as we turn the pages and get to know him better, we see there is more to Justin than his illness. He has interests, hobbies and yes, loves. Justin has been dating his girlfriend, Jackie for over 20 years; although its not always a straightforward relationship. Nevertheless, the love story is central to the projects narrative, revealing their lives and also the authorities ‘Kafkaesque’ and clumsy attempts to both care for, and or control the pair.
Justin’s passion for bird-watching is a theme which knits the book together from start to finish; the resilience he draws from this hobby is an important theme.
This book did not set out to be a political polemic; rather, my intention was to fight stigma and share Justin’s story so we can understand, empathize and celebrate Justin’s individuality. However, inevitably by studying the problems affecting my brother, the work speaks of and draws attention to the crisis in mental health care, raising important questions about how we look after our most vulnerable citizens.
Vision and Mission
I am seeking to personalise the global issues surrounding mental health and to contribute culturally to conversations about how we fund services and care for our own. This work is a call to action, but also storytelling is what we humans do; by sharing our experiences, we help each other. Big Brother is important as a document, but at its core is its intrinsic artistic value; contributions by both myself and Justin can be valued in themselves and also as sparking points for other people’s creative journeys.
The project is still in development and I am looking for partners and assistance especially for:
Funding ( including crowd)
Talks and events
Marketing and social networks
please contact me if you can help, interested in an advance purchase of the book or would like or to be added the mailing list: Mail@louisquail.com